As part of Saudi Arabia’s efforts to ensure that its citizens receive quality, accessible health care, the National Genetic and Birth Defects Registry (NGBDR) is building a national registry of genetic disorders, birth defects and developmental disabilities for the Kingdom.
Established in 2003, the registry program is funded by the Prince Salman Center for Disability Research in cooperation with the King Faisal Specialist Hospital and Research Center.
The registry program seeks to identify the prevalence of genetic disorders, birth defects and developmental disabilities in the Kingdom in addition to the distribution of patients according to tribal origin and location. It then aims to combine that information into a single database that can be accessed by the Kingdom’s health care system.
The database is expected to enrich medical research and assist in population health planning and the allocation of medical resources.
By 2007, the program plans to include all Gulf Cooperation Council (GCC) countries into one integrated registry.
More information is available about the program on its web site at www.ngbdr.org.sa.